The 20 Best Clouston Syndrome Doctors Near Me in Kansas City, MO

Find the Top Clouston Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 10 doctor with experience in Clouston Syndrome near Kansas City, MO. Of these, 8 are Experienced and 2 are Advanced.

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10 providers found
    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome

    Children's Mercy Clinics On Broadway

    3101 Broadway Blvd, 
    Kansas City, MO 
     (2.1 miles away)
    Languages Spoken:
    English

    Kimberly Horii is a Pediatrics provider practicing medicine in Kansas City, Missouri. Dr. Horii is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Hemangioma, PHACE Syndrome, Clouston Syndrome, and Ectodermal Dysplasias.

    Advanced in Clouston Syndrome
    Pediatrics
    Advanced in Clouston Syndrome
    Pediatrics

    Children's Mercy Clinics On Broadway

    3101 Broadway Blvd, 
    Kansas City, MO 
     (2.1 miles away)
    Languages Spoken:
    English

    Amy Nopper is a Pediatrics provider practicing medicine in Kansas City, Missouri. Dr. Nopper is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Hemangioma, PHACE Syndrome, Vascular Birthmark, and Aplasia Cutis Congenita.

    Experienced in Clouston Syndrome
    Pediatrics
    Experienced in Clouston Syndrome
    Pediatrics

    Children's Mercy Clinics On Broadway

    3101 Broadway Blvd, 
    Kansas City, MO 
     (2.1 miles away)
    Languages Spoken:
    English

    Kristi Canty is a Pediatrics provider practicing medicine in Kansas City, Missouri. Dr. Canty is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her clinical expertise encompasses AEC Syndrome, Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias.

    Learn about our expert tiers
    Experienced in Clouston Syndrome
    Obstetrics and Gynecology
    Experienced in Clouston Syndrome
    Obstetrics and Gynecology

    Truman Inpatient PSYCH Unit

    2301 Holmes St, 
    Kansas City, MO 
     (1.1 miles away)
    Languages Spoken:
    English

    Anthony Odibo is an Obstetrics and Gynecologist practicing medicine in Kansas City, Missouri. Dr. Odibo is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Intrauterine Growth Restriction, Small for Gestational Age, Preeclampsia, and Placenta Previa.

    Experienced in Clouston Syndrome
    Neonatology | Pediatrics
    Experienced in Clouston Syndrome
    Neonatology | Pediatrics

    Children's Mercy Kansas City

    2401 Gillham Rd, 
    Kansas City, MO 
     (1.1 miles away)
    Languages Spoken:
    English

    Mariana Theodoro is a Neonatologist and a Pediatrics provider practicing medicine in Kansas City, Missouri. Dr. Theodoro is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her clinical expertise encompasses Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Premature Infant.

    Experienced in Clouston Syndrome
    Pediatrics
    Experienced in Clouston Syndrome
    Pediatrics

    Children's Mercy Kansas City

    2401 Gillham Rd, 
    Kansas City, MO 
     (1.1 miles away)
    Languages Spoken:
    English

    Brian Carter is a Pediatrics provider practicing medicine in Kansas City, Missouri. Dr. Carter is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Premature Infant, Bronchopulmonary Dysplasia, Intrauterine Growth Restriction, and Myelomeningocele.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    2101 Charlotte St # 110, 
    Kansas City, MO 
     (1.1 miles away)
    Languages Spoken:
    English

    Anand Rajpara is a Dermatologist practicing medicine in Kansas City, Missouri. Dr. Rajpara is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Melanoma, Psoriasis, Actinic Keratosis, and Warts.

    Experienced in Clouston Syndrome
    Allergy and Immunology
    Experienced in Clouston Syndrome
    Allergy and Immunology

    Children's Mercy Clinics On Broadway

    3101 Broadway Blvd, 
    Kansas City, MO 
     (2.1 miles away)
    Languages Spoken:
    English

    Nikita Raje is an Allergy and Immunologist practicing medicine in Kansas City, Missouri. Dr. Raje is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her clinical expertise encompasses AEC Syndrome, Immune Defect due to Absence of Thymus, DiGeorge Syndrome, and Neonatal Herpes.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Children's Mercy-Pediatric Care North

    8781 N Platte Purchase Dr, 
    Kansas City, MO 
     (10.6 miles away)
    Languages Spoken:
    English

    Melissa Beard is a Pediatrics provider practicing medicine in Kansas City, Missouri. Dr. Beard is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Obesity in Children, Zlotogora-Ogur Syndrome, Clouston Syndrome, and Ectodermal Dysplasias.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Wesley Pediatric Specialists

    3243 E Murdock St Ste 500 And 510, 
    Overland Park, KS 
     (13.2 miles away)
    Languages Spoken:
    English

    Elizabeth Beltran is a Pediatrics provider practicing medicine in Overland Park, Kansas. Dr. Beltran is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Biotinidase Deficiency, Chromosome 13q Deletion, and MELAS Syndrome.

    Showing 1-10 of 10

    Last Updated: 04/28/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor near Kansas City, MO?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor near Kansas City, MO?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors near Kansas City, MO?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors near Kansas City, MO?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor near Kansas City, MO?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor near Kansas City, MO?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors near Kansas City, MO?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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